Wednesday, June 27, 2012

One Year Ago Today....

I remember June 27th, 2011 so vividly.... It was by far the hardest day of my entire life.  Leaving your child as they cry for you, laying on a huge operating table getting hooked up to iv's and machines that will sustain his life.... nothing prepares you.  Nothing.

But, the day was also the best day of my life, because Dr. Rebeyka and his amazing team, fixed Braydens little heart.  His life has changed drastically, he has become such a ball of fire it amazes me and everyone around us.  The energy that this child has, that he just simply didn't have before, is astounding.

This child that a year ago couldn't go through the day without having up to 6 hours worth of naps some days, and was still in bed at 7pm, wasn't able to eat because he had no energy or appetite and couldn't gain weight, and couldn't breathe properly because his lungs were compromised.... the little angel that was in congestive heart failure and nobody caught it.  This child has done a complete 180 degrees and eats like a horse (and eats EVERYTHING), only has one nap a day, has almost NO down time the entire time he's awake because he's running everywhere and climbing everything...  He has gained close to 10lbs and grown inches....  This child is my heart warrior, my hero....

This experience isn't over, because we don't know what the future holds.  We don't know if or when another surgery will happen.  For now, we keep him on his medications, watch for signs, and just enjoy every single moment watching him grow and thrive.  But looking at what has happened over the last year, I know that he will be fine.  No matter what happens or how many trips to the hospital we end up making.  He will be fine.

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